Madi Vanstone spent most of her childhood absent from school as she received treatment from for cystic fibrosis.
Now in her early 20s, Vanstone wants to thank the Hospital for Sick Kids for caring for her and her family by raising $10,000 at an event at Lavender Polo Farm near Newmarket on Saturday, July 20 from 9 a.m. to 5 p.m.
“Growing up with cystic fibrosis was hard,” said Vanstone. “I was behind in school, and I had a hard time making friends because of how frequently I was in the hospital or at home sick.”
“The care is so incredible, personal and world-renowned, we wanted to give back to them for the amazing work that everybody in the hospital does,” said Beth Vanstone, Madi's mother. “That includes the people who come and clean our rooms. We built relationships with everybody in the hospital because we were there so much and they’re all special. This is our way to give back and say thank you for all the incredible work they do.”
Tickets are now available for the fundraising festival at Lavender Polo Farm at 20132 McCowan Rd. in East Gwillimbury. A family admission pass costs $40 for two adults and children under 18 years old, $15 for an adult pass, $10 for a child pass, $10 for a lunch ticket, and $10 for an activity and raffle ticket. Organizers are hoping participants will purchase tickets before the event, however passes will be available at the door.
The event will feature an exhibition polo match, craft vendors, yoga, a firetruck and firefighters, a horse photo booth, cookie decorating, and food from an esteemed chef. The raffle includes a signed Toronto Maple Leafs jersey signed by Auston Matthews, who visited Vanstone at the hospital.
Proceeds from the event will go to SickKids, and Lavender Polo Farm has contributed to the event by offering their venue for free.
“Hospital stays were hard and very frequent,” said Vanstone. “With the rate my health was declining, it was expected I would need a transplant by the age of 15. Thanks to the care at SickKids, I’m here today with no transplant.”
Beth stayed at the hospital for two weeks at a time with Madi. It was difficult for the entire family.
“My husband would be home with my other daughter, and I stayed at the hospital with Madi watching her endure IVs, pokes, therapies, and treatments,” said Beth. “It was sad when her friends were out playing, having fun and she was in the hospital.”
Vanstone developed deep friendships with staff and medical professionals at the hospital. The cystic fibrosis clinic at the hospital provides specialized multidisciplinary care for children and youth, from birth to 17 years old.
The team comprises pediatric respirologists, gastroenterologists, a specialized nurse practitioner, clinic nurses, a dietician, a physiotherapist, a social worker, and a psychologist.
“Although hospitalizations were difficult, SickKids did everything to make my stay as enjoyable as possible,” said Vanstone. “They had volunteers come and see me every day with fun activities, or even to just hang out with me. The nursing staff were truly a part of our family and the doctors were incredible. Going into the clinic for checkups felt like going to visit friends. I was a kid and didn’t know much about what was going on, but I knew that when I went to my appointments I would see some of my favourite faces.”
“What makes SickKids special was that they weren’t just caring for me, they cared for my family, too,” she added. “Illnesses often affect the whole family, and SickKids ensured that my family had the resources to care for me and themselves. They looked out for us. I’m so grateful.”
Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. At this time, there is no cure, according to Cystic Fibrosis Canada.
The disease causes several effects on the body but mainly affects the digestive system and lungs. The degree of cystic fibrosis severity differs from person to person, however, the persistence and ongoing infection in the lungs, with destruction of the lungs and loss of lung function, will eventually lead to death in the majority of people with it. Vanstone received a modular therapy to correct a malfunctioning protein in her body caused by the disease.
More than 4,300 Canadian children, adolescents, and adults with cystic fibrosis attend specialized cystic fibrosis clinics. Half of the Canadians who died from the disease in the past five years were under the age of 37.
“Every single donation and ticket sold brings us closer to providing other kids with the care and support they need to thrive,” said Vanstone. “It’s an honour to be involved along with my mom, Beth.”
